I won’t eat there now because I no longer have any choices. I don’t know what is up with that – seriously, it is baffling to me If they go as far to have a GF Menu, they should by all reasoning be the safer options out there- for me unforunately this has not been the case .. I ate there 3times with out any symptoms at all . Kudos and thanks for all that you do. THANK YOU! (And the Domino’s one as well). I agree, but she wanted to know that she will have options when she has to travel again (which may not be for several months). I come to this blog to feel understood.! Thanks for blazing the trail. Aholes! I am GF too and got a food sensitivity test done which shows a lot of sensitivity to foods I never thought cause any problem… I have only eaten in a TOTALLY dedicated GF restaurant and bakery (it’s called Sherry Lynn’s in Latham, NY) and like you, I cried when I realized I could eat there and be safe. So when she goes to Changs she breaks out in hives for at least a week. Arg. Over time, this reaction damages your small intestine's lining and prevents it from absorbing some nutrients (malabsorption). The one I go to in Beachwood, OH is very careful, just like the one you described in FL. Narcissists will NEVER allow you to be happy…) Melissa, Thanks Melissa. Thank you for your answers, wisdom, support and humor. Plus there are probably 1,000's of celiacs who drive past there every month whether they live there or not! I’m not big on natural healing stuff, but it was easy enough to implement and made a significant difference. Because of you, I now eat unprocessed foods most of the time and the suicidal thoughts are now rare. Please call the restaurant and let them know. I’ve been to 2 of their restaurants multiple times and have had excellent experiences. My daughter loves California rolls, but it’s almost impossible to find them (at least in Ohio! It is my godsend – I don’t know what I would do without it. It’s a shame, but eating out is honestly my biggest fear. When I travel, I take one check-on bag that has enough food (including my “hot” pot, etc.) I am self-diagnosed, and have been craving Chinese food for the longest time. one of my bosses gave me a P.F. The UMD Celiac Center had them as a part of their expo last month so they are definitely marketing themselves as being safe for Celiacs. You are true and passionate celiac disease advocate, and an important voice to celiacs all over the world. “If only gluten glowed bright orange or something.” – that would honestly be so awesome and I would definitely eat out more often!! Is this Celiac Awareness or Fear-Mongering? It’s unacceptable, and if we have to keep our mouths closed in fear of, “soon, no one will want to bother to put those protocols in place… and we’ll be left with no place to go” then buckle up, because you’ll get your wish: everywhere, including all the restaurants we always wished would, will claim to be “gluten free” and be anything but. I even told them that when they showed up at our GF Expo. I know it’s tough, but suggest to your cousin that she not eat out anywhere for a few weeks/months if she can help it. So no more. An Interview with Dr. Peter Gibson, Let’s Talk About (Gluten) Intolerance: An Interview With Chef Marc Vetri, An Interview with Jenna Drew: Miss NJ International and Fellow Celiac Advocate, 20 Emails in 4 Days: Part IV (the final act), Celiac.com: A Tragic Tale of Good Intention$ Gone Awry. Struggling through health issues and trying to eat gluten free can make a person feel a tad…alone. I have also had bad experiences at Outback's and don't bother with them anymore. Thankfully, both times they were gluten-free and the servers have been so apologetic about it. Of all the chains out there with gluten-free menus, PF Changs is the only one with a consistent level of training on the gluten-free menu and the issues involved that I have found. It was just ungodly painful yesterday, so something just isn’t right. AllergyEats: Celiac and Gluten-Intolerant Guests Should Be Careful of Gluten-Free Menus. Sorry but that’s how the world turns. And then I heard that PF Chang’s, which has a location just a few miles from my house at the time, had a gluten-free menu. Everything you discuss is so spot on. I think it's all perspective. I will get my list together and post. We used to eat at this location a couple years ago, but I never got sick and we had always gotten it to go. Now Im really sick. Thanks Caley. again, we tipped well. I think their food is very greasy and rich so that may be the reason why some of you get a stomach ache. Hubby eats things with soy in them and he doesn’t have too much of a problem, but when he eats things cooked in soy oil he has a problem. My name is Tiffany Hamby and I am the Guest Relations Manager for P.F. So naturally, I questioned my server, who assured me it was gluten-free and was a tad put off that I asked her to go back in the kitchen and verify. Do not eat there. I am sorry, but that just makes no sense to me. It’s just a celiac’s life. We’re picky that way ;). I used to eat out a lot more but have really scaled it down since my antibodies were highly elevated for nearly 1 1/2 years since going gluten-free. Ps I’ve also never asked them to make me food. Im sorry GF Dude. Child with Celiac Getting Bullied at School. May your day be as bright and hopeful as mine is feeling right now. Best wishes and most importantly, THANK YOU hero! Are you in any kind of support group? An error on the chef I was told …. I was seated at the end of the long table when you first went in the back room, my hubby was there too. They vary tremendously. Now a days most people ask if I’m eating Gluten Free to lose weight, or manage health problems. Most “soy sauce” has wheat listed as the first ingredient. In fact, even if just a crumb gluten coming comes in contact with your gluten-free meal, it can set off a cascade of painful symptoms in people with celiac disease or gluten sensitivity. Recognizing the signs of celiac and understanding that going gluten free does not fix everyone and every symptom associated with the disease. Please don't ever stop sharing your stories. The sauces, ladles, etc. Could have been a hundred other things. Lady, being beautiful and helpful. A good egg roll is hard to resist. I know this because I emailed their corporate headquarters. I got the Garlic Chicken and Broccoli. Do I wish it were different? I have mentioned I have had the wrong plates/dishes brought out. You don't know what spoon got stuck where, even if every food … But maybe they were prepared on a counter where lemongrass was cut up, etc… So basically, you may be having a problem not only with incorrect sauces, but cross-contamination. You rock! This is NOT eating by subtraction. The GF meals we ordered were on their designated GF plates, the food was very good and I had no issues whatsoever. If you want a listing of some of the other places I go to, let me know. You've given me some hope. The seriousness, the comedy, the information, all of it has helped me transition as smoothly as possible. Please message me your mailing address. My heart soared. The.same.thing.happened. The PF Changs I went to is the one in Princeton. I so appreciate PF Chang’s for making a GF menu and trying to accomidate us gluten free people. We know it isn’t easy going out in public, but our research has shown that there are a […] My husband went back to complain was assured that there was no way any gluten was in my food. Thanks Dude! Anecodotal evidence is not proof of a “corporate or distribution level” oversight that is somehow glutening people in ALL the PF Chang restaurants. Thank you for the site info <3. She was just biopsied for Celiac this week and it’s looking promising that she is going to be diagnosed – so, she’s freaking out right now. IrishHeart: I’m glad you posted a positive comment about PF Changs, and you’re right – some of the sites are better than others. . Some vinegars are ok, like apple cider or rice vinegar made in a dedicated facility, dedicated equipment. For the places that don't have an official gluten-free menu on site but you've contacted their corporate office, those places I would call ahead of time. I had a great experience at P F Chang’s. So I guess I might have to continue to steer clear. I was going to post the link to their website later on today so everyone would get the list of places in New England where they could get a delicious, safe meal. I’m so sorry you have it. People always expect and want more, but they never think about what it takes to produce the GF items. The dragon tea is quite nice to share. Every time I ate there my stomach killed me. Keeping a 100% GF diet is difficult enough. The second time I got really, really sick. If not can you start one? Not only are they consistent, but the staff is well-trained and they have a system in place so that it is easy to tell the gluten-free dishes from the non-gluten-free dishes. THANK YOU! . I can eat everything on the hot bar. I am always scared at restaurants even though they have a GF menu – doesn’t mean the people in the kitchen understand cross contamination. Had a great experience eating GF at Disney World recently / there the manager or chef meets with you, takes your order and explain what they do in the kitchen to prevent cross contamination. Haha. I’m from Canada. With so many people in the restaurant, it is easy for them to make a mistake. Together you have all educated, made me mad, made me cry and most importantly, made me feel like I'm not alone in all this. At this point I was salivating in anticipation of a great marinara. I never hear ANYONE discussing the H word. Hey, maybe it’s a good thing we can’t eat there. Yum! Be adamant and persistent, educate people about the real disease. I sure do hope you recover soon!!! The staff at P.F. View HONcode Certificate. Hey, if you and your family ever come up this way, I’ll meet you at Sherry Lynn’s and introduce you to Sherry (a fellow celiac) and her hubs, Howie. but they don’t. Ate at PF Changs yesterday. All their proteins come from their processor marinating in sauces that contain egg. Even if we could use specials glasses that worked like heat seekers that could pick up gluten anywhere. in Coping with Celiac Disease, By . I have only ordered singapore street noodles or fried rice. Thanks. i use to have the same problem, and then I realized that I ALSO have a soy intolerance/allergy. I have eaten out other places and simply ordered food that was not likely to have gluten (salad; bare burger, etc) and never a problem, so clearly Changs is being careless or they don’t understand. I do NOT get takeout anywhere. Here’s what going to happen: soon, no one will want to bother to put those protocols in place… and we’ll be left with no place to go. (I sure do) or perhaps some of you just cannot handle spicy foods because you are still healing? Wish all establishments were like that. Your frustrations, humor and encouragement have already helped me tremendously to carry on. 5)The dish is then put on a P.F. He was so excited to eat out and you could tell he felt sort of special that a restaurant cared enough to have a GF menu. The corporate office contacted me via Twitter and we spoke on the phone today. Thank you SO much! Kids need them!!! Fairly new to having celiac and I just reciently ate at PF Changs. Sorry to hear. Perhaps you should contact corporate about the location you visited. Why the Celiac Hate Jessica Jones? Sometimes I wish the Congress underwent celiac testing to see how many of those airheads are celiac and then how frustrating it is to eat a certain way not because it’s a ‘fad’ but because it’s life. The freedom of just running by and grabbing something or sitting down to enjoy a meal that I don’t have to prepare or clean-up. It’s nice knowing that there are other people who feel exactly the way I do about Celiac Disease! I did, no problems. Sometimes I think ordering online and pressing the “gluten-free” button makes it safer because it’s right in front of their faces on the order, I don’t have to worry about someone messing it up. And yes, I’m quite sad about it. Experienced hives on ny face and then got really sick. THE ONLY WAY TO KEEP TRUE “GLUTEN FREE” IN RESTAURANTS IS TO BE STRICT AND DEMAND HIGHER STANDARDS OF THEM. I do think the soy is part of it Heather. Since having numerous blood tests to check my antibody levels and 2 endoscopies, I’ve really gotten much more strict about what I eat and am eating out much less. It was a short-lived relationship. Ok I’m back less than 24 hours later to say DON’T TRUST CHANGS!!! Continued use is acceptance of our Terms of Use and Privacy Policy. If only gluten glowed bright orange or something. He’d just gotten to the point where he was experiencing hunger again after years of nausea. Fine. They put a a lot of salt in their food, probably from the soy sauce and I don't eat much salty food. I was sooo cautious and asked again and the guy didn’t even check. We celiacs like certainly. So they brought me out a HUGE bowl of berries. The food is outstanding and the gluten-free menu is separate from the main menu so there's no mix-ups. . Sure hope you recover from the Painful Food episode quickly! I’ve had pretty good luck with this approach. Changs and ordered completely off their GF menu. I’ve known that I have CD since 1997 and believe me, things are a whole lot easier now than they were then. 2)The first point of contact in the kitchen prepares the protein, etc on a RED PLATE to alert the cook line of the allergy But tonight, we went and were both sick half way through our meal. Our Gluten Free Menus are available in our restaurants as well. So I can’t see any other way to eat out than by taking the time and the responsibility to try determine whether a restaurant is safe for me to eat or not. Ok, I couldn’t resist, I’m back after a few months. That’s just not going to happen!! Is there anything that you guys find that is a safe order when out? This site complies with the HONcode standard for trustworthy health information: verify here. Here’s the scoop – hydrolyzed or fermented products can not be measured for … They make an awesome flourless GF chocolate cake that is fabulous. I wonder what’s going on there (I haven’t read eveyone’s comments yet) and why some people get sick and others don’t. )made made without artificial crab meat, which contains wheat. I just wanted to go have a nice safe meal..ask for the gluten-free menu and order. Egg actually mimics gluten, as do corn and oats. I finally felt heard and accepted. Personally have had bad luck with restaurants that claim to have a GF Menu- I am severe celiac and always explain in detail what I need.. even when the manager came out and personally took my order, then assured me everything was very safe I still got sick 99% of the time and at many different places. Sorry to hear about your experience Gluten Dude. but this is in a rural area, small town kinda place, I think that will work. Check it out. It gives her an opportunity to put in a plug for gluten free dining options, as well. Is PF Chang’s safe for celiacs? A few months later the state said a warning HAD to be posted on the salad bar for sulfites. The bloating was incredible – my clothes got really tight and I had to go back and work around other people, feeling really uncomfortable and embarrassed. Finally! I informed them that it would be best for them to actually say their soy sauce is gluten free provided that it is certified gluten free rather than to say “usually” and “typically”. I am just starting month three of a gluten free lifestyle after finally being diagnosed with celiac disease and your blogs have helped to educate me (and my family) and put things in perspective. in Post Diagnosis, Recovery & Treatment of Celiac Disease, By And anyone with Celiac should not be going to restaurants that serve anything gluten or any carb that claims to be GF since the FDA allows up to 2.5% gluten in products labeled “certified gluten free.” I’m surprised someone who claims to know so much about Celiac as “gluten dude” doesn’t know these very important facts. I had to walk away from just about everyone who was not able to be supportive. Thank you! Dude…Where the hell have you been all my life? The more I read though the more I feel like I shouldn’t go out at all. Thanks for all your input on multiple articles Rosemary. You know what she gets in return many times? I Googled “fuck celiac” and found my way to your blog. 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